Dad with three kids laughing on a couchDad with three kids laughing on a couch

EVERY PERSON’S
JOURNEY IS UNIQUE

Connect with communities

Share experiences and gain insights into how to live better with your inherited retinal disease.

Clicking on any link below will take you to a third-party website.

Education, Support, and Community

  • Achroma Corp logo

  • Curing Retinal Blindness Foundation logo

  • Fighting Blindness Canada logo

  • Foundation Fighting Blindness logo

  • Hope in Focus logo

  • Moms for Sight logo

  • National Organization for Rare Disorders logo

  • Retina International logo

  • Save Sight Now logo

  • American Society for Retina Specialists logo
  • National Society of Genetic Counselors logo

"Genetic testing afforded us so many answers"

Allison, proud mom of two children living with retinitis pigmentosa, shares how genetic testing provided her family a roadmap for the future. Watch her story.

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Find answers to big questions

How do inherited retinal diseases happen?

Narrated by genetic counselor Elena, this animated video brings to life the surprising story of how inherited retinal diseases occur.

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How are retinal diseases inherited?

There are many ways genes can be inherited, such as autosomal dominant, autosomal recessive, and X-linked inheritance.

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